SUPPORT RARE DISEASES
Almy foundation is a non-profit organization that aims to promote the research of rare orphan diseases and their cure.
Almy was founded by Adi Goldenberg who's daughter, Elya, was diagnosed recently after 16 years of searching with a Childhood Onset Neurodegenerative Disease known as
CONDBA caused by a rare mutation in the UBTF gene.
To achieve its goals:
We aim at promoting interdisciplinary model of direct communication between Scientists and Medical Doctors. Raise funds and awareness to the importance of research of rare diseases.
Development of interdisciplinary scientific and medical research, for the purpose of developing a treatment for the rare disease CONDBA and other rare diseases.
Your donation will fund initial research to find better ways to identify, treat, and cure UBTF-related disease.